THANK YOU

Hola Kristiina,

Some weeks ago I did update the bank account post with the following message:

We are grateful for the support received and will be implementing our project for the next few years.

For the moment we kindly ask to halt donations as the project is sufficiently funded. We will, therefore, concentrate in the implementation phase.

Dani´s health is our utmost desire and focus.

Despite of it, we keep receiving donations from friends and colleagues who want to drop their contribution. It will be certainly added to the project and we are grateful for it. However, we encourage donors with warmth and respect to kindly discontinue deposits.

Now Kristiina, I leave you with Dani´s basketball skills.

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Day By Day

Hola Kristiina,

I often think about the future day Dani and I sit together and chat about the past. About the days he struggled on daily basis to improve his condition, and about the numerous hours exercised to gain mobility. I picture this conversation among laughter and emotions. But it is rather a conspicuous picture.

I am so confident that this is going to happen, Kristiina, that no momentary backlash suffered or inflicted to our project will impact its objective. Furthermore, troubles on the way will only encourage us more. 

This, Kristiina, brings me to the never forget to thank all those who keep committing, helping, reading, commenting, and thinking about Dani. Without them, this is not being possible. 

Now, let me show you some Dani in action. This is his day by day effort, coordinated by Tesfaye, our Guardian Angel.

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*Featured Image: Niki de Saint Phalle, at Giardino dei Tarocchi. Capalbio, Tuscany, Italy.

Action Dani!

Hola Kristiina,

While most of us enjoy warm and sunny days, Dani keeps exercising in rainy season. You may think that he looks serious because of the chilly days in Addis, but I agree with your mom. He does not smile so often because his physiotherapy is becoming more demanding.

Now I will let you appreciate Dani’s efforts. Tesfaye has kindly emailed us these motivating pictures.

DSCF6185 DSCF6162 DSCF6183 DSCF5978 DSCF6190Happy saint day, Kristiina.

July 6th, 2014

Hola Kristiina,

Today is a special day for all of us and while we think about you I would like to express the positive moments we are experiencing:

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Dani is calling me?

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Go Dani, go!

 

 

 

 

 

Dani is doing good. His remarkable good mood has not varied since the last time we talked. He has recently gone through a series of epilepsy attacks that were heftier than normal, but he has been treated and the last two weeks became stable. His seventeen hours of extra physiotherapy with Tesfaye on June have been assessed as responsive and overall positive. This has led to explore the possibility to provide orthopaedic aid, to which we will commit.

The North has been extraordinary. Manamansalo was not only the peaceful retreat you described, but a delight for the senses where life turned around nature, coexistence, sauna, and the lake, a revitalizing presence that was challenging to bring to an end. Karhunkierros presented me a natural diversity on the go that left me speechless in uncountable moments. Northern Ostrobothnia displayed landscapes, people, and animals that were beautiful, hospitable, and gracious.

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Kitkajoki river at Karhunkierros trail

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Manamansalo

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Nilla, the gorgeous Lapponian Herder

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Around Merenoja, in Karhunkierros trail

 

 

 

 

 

 

 

 

 

 

Finally, Pupunen, we are celebrating your birthday today and will blow the candle on the cake, imagining that Aleksandra and yourself are likewise doing it.

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Happy birthday, Kristiina

Happy birthday!

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Happy birthday!

A Beautiful Day

Hola Kristiina,

What a beautiful day I experienced yesterday! It was the day we signed our first service contract to provide physiotherapy for Dani. From June 1st, he will have four hours per week of dedicated physio, plus three more sessions at a rate of thirty minutes per session, agreed by the orphanage with the same physiotherapist. Our contract will be automatically extended every three months depending on regular progress assessments. We are hopeful and confident, and wish for a smooth and progressive recovery.

But, Kristiina, this is not the end. Yesterday, after several months I managed to cycle and see my city from the bike. Something I was genuinely missing.

It was a beautiful day!

Thanks.

Dani & Tesfaye

Hola Kristiina,

We have finally agreed on a physiotherapy plan for Dani. Tesfaye, experienced physiotherapist in Addis, has presented us a draft with the hours he is going to spend with Dani. Four individual hours per week, plus one and half hours included in his regular visits to the orphanage, should be a good starting point for a consistent and regular physical practice. Dani is going to love it, as he is very receptive to exercise and company.
We are currently finalizing the operational aspects of the “physio plan” and although we do not have a time limit, it will be dependable on the next results presented by the Children Hospital at the Universitaetspital Basel, where a neuro-paediatric doctor has agreed to study Dani’s case.
So, Kristiina, as you can read we are steadily advancing, and once more, we must thank all the people engaged in bringing lots of smiles to Dani’s face.

 

Dani and friends

Dani and friends

 

Dani & Dandy

Hola Kristiina,

We have got further reports on Dani’s syndrome, which probably dates back to a possible stroke he suffered during his early days or even while in his mother’s womb. One of its effects is hemiplegia, which developed after an atrophy in the right side of his brain, due to a lack of blood irrigation throughout the years. This made a vacuous on the right side that has been gradually filled with brain fluid. The fluid is pressuring the left side of the brain and slowly harming this side too. The hydrocephalia could be attenuated through neuro-surgery with a shunt, although the risk of fatal brain infection is rather high, especially with Dani’s living conditions.

With such prospects, Kristiina, we are going to look for possible clinical solutions out of Ethiopia. As well, we would like to improve Dani’s living conditions by establishing a consistent amount of regular physiotherapy sessions and search for educational opportunities, that could provide him with some future independence.

Kristiina, as you can read Dani has to learn to live with “Dandy” and we believe we can support him in this endeavour.

 

Dani

Dani

*We would like to thank the Black Lion and Bethel Teaching General hospitals in Addis Ababa, Ethiopia.

With A Big Help of Our Friends

Hola Kristiina, Easter time has arrived and trees are blooming all around since a few weeks in most parts of Europe, and the “small” rainy season must have started in Ethiopia. I hope the rain does not stop Dani from going out of his ward to enjoy a few moments with his mates in the playground. I am sure he is having the support of some volunteers and they are all playing together, while the little ones hang from his wheel chair and speed circling the football court. That would definitely make Dani’s day. Meanwhile, we keep doing well in Europe, and many more of your and my families, friends, colleagues and ex-colleagues, peers, acquaintances, and even unknown people touched by the project provide support. Among them Jose Luis and Yolanda, Irja, Emilio, Mima, Patricia, Dacio, Rene, Sergio, Amelie, and Julian, Tea and Carmine, Rossana, Ruth Elisabeth, Juliane, Carlos, and Mateo, Sahar, Monica, Matthew, Stina, Tanis, Linda, Päivi, Melanie and family, Giorgia and Veljko, Isabelle, Leila, Vera-Maria, Matthias and Andrea, Giorgio, Eloy, Eija, Liisa, Ville and Outi, Titta, Laura and Markus, De Stefanis International, Hilkka, Tuomo and Sirkka, Hannu and Kali, Terhi, Jaakko, Reima, Arja, Petri and Viljami, Laura, Viivi, Anna and Eva, Laura, WFP colleagues in Copenhagen, Vikke, Tiina and Tatu, Pohjan Veikot, Kaj, Stefan and Mirja, Kulkijat, Pia, familia Sanjurjo, Prof. Hagemann, Maria, Maria, Riitta and Antti, Antti and family, Kaarina and Mick, Teuvo, Tanja, Nadja and Noora, BJ, Sirpa and Sofi, Marie, Rebeca, Carlo and Chiara, Helena and Hannu, Helena and Matti, Anne, Anna-Riitta, Maija and Kimmo, Annukka, Annikki and Veijo, Isabelle, Susanna, Tiina and Timo, YMCA Oulu, Anna ja Petri, Kaisa and family, Yobdar, Hannu and Pirjo, Anna-Kaisa, Kalle and Aapo, Irja and Teuvo, Helinä and Pekka, Riikka and family, Birgitta and Panu, Nathalie and Umberto, Manuel and Regula, Veera, Markku and Soile, cousin Elina and her family, Eeva-Maria and Kimmo, Ullamaija and Kaarle, Inma and Miquel, Pauliina, Atte, Marianne, Henrietta and Klaus, Aira and Seppo, Auli, Risto and families of cousins, Leena, Pentti and families of cousins, Veera, Jessica, Andres and Mercedes, Marta, Rafael, and Mariaana and Veltsu. Pupu, I am learning these days how much the ones who knew you cared, and that makes me happy. IMG_4221

Good morning, Kristiina

Hola Kristiina,

Forgive my delay, but as you say, I have been kind of busy the last month. I have met many good hearted, caring, and loving people, from your ample family and friends. Many of them unknown to me, some others known by your continual references. They have all shared their warmth with me, with my mom, and even with Chiara.

     But I want to update you about our progress with Dani. He is fine, playing drum with one stick and singing, as usual. Anne has emailed me the picture below, where he plays with little Dani, as well cheerful.

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Two Daniels

     Well, you knew that the orphanage had sent Dani for an MRI, and that doctor said that his clinical condition is Dandy-Walker syndrome. You knew as well that Hanna had gathered his clinical history and that some of your colleagues were networking to find a neurologist in Addis who would want to take over Dani’s case. So here’s where the news come:

Nathalie and her husband, Umberto, are further looking for neurologists. They have kindly contacted two of them, and we are waiting for their responses, although a birdie told me that help is on the way. As you know, this is not an easy task in Ethiopia, but they are highly supportive. We thank them so much. At the same time, I keep contacting the neurologist advised by your contacts and I am confident to get his response.

     On the orphanage side, Regula and Anne keep volunteering and they update me regularly with news about Dani. Hanna is in the loop, as well as the senior staff. They have kindly approved our wish. Your friends in Addis have showed interest to visit the orphanage, and perhaps drop a hand sometimes. This is very kind of them.

     As you can see, we are not alone in this. In addition to the help provided by the family and friends mentioned above, there is an immense number of people who are financially supporting, among them Jose Luis and Yolanda, Irja, Emilio, Mima, Patricia, Dacio, Rene, Sergio, Amelie, and Julian, Tea and Carmine, Rossana, Ruth Elisabeth, Juliane, Carlos, and Mateo, Sahar, Monica, Matthew, Stina, Tanis, Linda, Päivi, Melanie, Giorgia and Veljko, Isabelle, Leila, Vera-Maria, Matthias and Andrea, Giorgio, Eloy, Eija, Liisa, Ville and Outi, Titta, Laura and Markus, Hilkka, Tuomo and Sirkka, Hannu and Kali, Terhi, Jaakko, Reima, Arja, Petri and Viljami, Laura, Viivi, Anna and Eva, Laura, WFP colleagues in Copenhagen, Vikke, Tiina and Tatu, Pohjan Veikot, Kaj, Stefan and Mirja, Kulkijat, Pia, Familia Sanjurjo, Prof. Hagemann, Maria, Maria, Riitta and Antti, Antti and family, Kaarina and Mick, Teuvo, Tanja, Nadja and Noora, BJ, Sirpa and Sofi, Marie, Rebeca, Carlo and Chiara, Helena and Hannu, Helena and Matti, Anne, Anna-Riitta, Maija and Kimmo, Annukka, Annikki and Veijo, Isabelle, Susanna, Tiina and Timo, YMCA Oulu, Anna ja Petri, Kaisa and family, Yobdar, Hannu and Pirjo, Anna-Kaisa, Kalle and Aapo, Irja and Teuvo, Helinä and Pekka, Riikka and family, Birgitta and Panu, Chiara, Manuel and Regula, Veera, Markku and Soile, cousin Elina and her family, Eeva-Maria and Kimmo, Ullamaija and Kaarle, Inma and Miquel, Pauliina, Atte, Marianne, Henrietta and Klaus, Aira and Seppo, Auli, Risto and families of cousins, Leena, Pentti and families of cousins, Veera, Jessica, Andres and Mercedes, Marta, Rafael, and Mariaana and Veltsu. But this is not all, because support is still incoming.

    Kristiina, I would like to let you know that we do not forget about Izabelle, our travel mate, and Desta, our driver. Please tell them that our thoughts and prayers are with them.

Talk to you soon, Pupunen.

Roberto