Endet Neh

Hola Kristiina,

Last weeks have been information prolific and Dani visited Dr. Zenebe. Doctor has concluded that for some time a surgical intervention should not be beneficial, and that is what you can read underneath from Tesfaye´s lines:

December 18th:

Dear Roberto,
I have addressed your thought and everything what you said to Dani, he is happy as always and he was acting like dialing phone to you by saying Roberto,Robeto….”endet neh” means like how are you Roberto“.

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December 22nd:

Dani is getting better with  his urinary problems, and he is even in good mood after the adjustment of his epilepsy drug (phenobarbital).
As you said Dr Zenebe’s plan of treatment is caring and seems well planned,after we have made multiple Doctors visit,Dr Zenebe give as a better clinical judgement and opinion so what we have here is that to follow his plan of treatment,as I explained for you,Dani will have the appointment in January 31,2014 as part of his continuous follow-up,to see whether there is need for shunting or not,and other symptoms“.

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January 21st:

Dani is doing good and happy as always,He is keeping on his daily physiotherapy treatment“.

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February 4th:

Zelalem and I have taken Dani to Dr Zenebe for his appointment of two month on Monday February 2,2015.
 we  have explained to Dr Zenebe that Dani was showing some sort of  withdrawal symptoms after phenobarbital is gradually reduced and finally   stopped to give for him,The Dr. decide to replace for him combination of carpamine and phenytoin instead of phenobarbital and phenytoin.
We have asked him about shunting possibility as well,he has explained,Dani has no good sign for shunting at the moment and  as that will be good to check him in follow up.And He has given one month appointment for march 02,2015 to see how he is doing with the drug combination and if there is any new symptoms as well“.

February 8th:

Dani is fine and he is better with the new drug combinations and although it seems he need long period of rehabilitation time since other treatment(surgical innervation) is not done for him by this moment due to his conditions and Dr’s opinion.
Yesterday while i went to treat him,there was ceremony with children in the compound by two Ethiopian family and he was very happy I have attached some pictures while he was attending the ceremony“.

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THANK YOU

Hola Kristiina,

Some weeks ago I did update the bank account post with the following message:

We are grateful for the support received and will be implementing our project for the next few years.

For the moment we kindly ask to halt donations as the project is sufficiently funded. We will, therefore, concentrate in the implementation phase.

Dani´s health is our utmost desire and focus.

Despite of it, we keep receiving donations from friends and colleagues who want to drop their contribution. It will be certainly added to the project and we are grateful for it. However, we encourage donors with warmth and respect to kindly discontinue deposits.

Now Kristiina, I leave you with Dani´s basketball skills.

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Dani & Tesfaye

Hola Kristiina,

We have finally agreed on a physiotherapy plan for Dani. Tesfaye, experienced physiotherapist in Addis, has presented us a draft with the hours he is going to spend with Dani. Four individual hours per week, plus one and half hours included in his regular visits to the orphanage, should be a good starting point for a consistent and regular physical practice. Dani is going to love it, as he is very receptive to exercise and company.
We are currently finalizing the operational aspects of the “physio plan” and although we do not have a time limit, it will be dependable on the next results presented by the Children Hospital at the Universitaetspital Basel, where a neuro-paediatric doctor has agreed to study Dani’s case.
So, Kristiina, as you can read we are steadily advancing, and once more, we must thank all the people engaged in bringing lots of smiles to Dani’s face.

 

Dani and friends

Dani and friends