Following, please read the current status on Dani´s recovery. In addition to being steady on physio, we keep looking for solutions. Check out Tesfaye´s lines from September 24, 2014:
“How are you doing dear Roberto,(..)
About Dani’s surgery condition,if the entire surgery plan is taking place her in Ethiopia,i think it will be more supportive if he would be seen by another Doctor as well, that will help to identify a Diagnosis two or more Doctors agreed on, to see similarity of their ideas and to see whether there is willingness to do the surgery here or not. There are two or three senior neuro surgeon in Addis. One is the one you met last time,Dr mersha. I have tried to discuss with office in the silenat and Zelalem respond me in the same way, that will help if he would be seen by more than one Doctor.
If you would agree with this ideas it will be Good, during Dani is going to see the Doctor, if there is one person from silenat office, one person from your side (..) or any one you think of could able to follow may be i don’t know there
might be continuous follow up and myself, I hope that will create good understand about Dani’s surgery situation among all.
About orthopedic aid that will be helpful, I will late you know.
Thank you very much.“
We have got further reports on Dani’s syndrome, which probably dates back to a possible stroke he suffered during his early days or even while in his mother’s womb. One of its effects is hemiplegia, which developed after an atrophy in the right side of his brain, due to a lack of blood irrigation throughout the years. This made a vacuous on the right side that has been gradually filled with brain fluid. The fluid is pressuring the left side of the brain and slowly harming this side too. The hydrocephalia could be attenuated through neuro-surgery with a shunt, although the risk of fatal brain infection is rather high, especially with Dani’s living conditions.
With such prospects, Kristiina, we are going to look for possible clinical solutions out of Ethiopia. As well, we would like to improve Dani’s living conditions by establishing a consistent amount of regular physiotherapy sessions and search for educational opportunities, that could provide him with some future independence.
Kristiina, as you can read Dani has to learn to live with “Dandy” and we believe we can support him in this endeavour.