After we have explained Dani is in good condition and his epileptic attack is almost controlled, the Doctor has decided to decrease the medication for five months.
Category Archives: Memorial
The first year was the beginning of a beautiful project. Resilience channeled towards assistance.
The second year was fond memories. Assistance settled, provided continuity to the project, and hopefully Dani felt a glimpse of routine in his daily work.
The third year has being joy through inspiration. You keep strongly inspiring us.
Thank you Kristiina for the values left.
Thank you to those who directly and from the shadows keep believing in this project and in Dani.
Dani In Progress
Tesfaye has regularly updated on Dani´s progress throughout the pre-surgery, surgery and recovery process. Please see daily excerpts:
“Today November six is his admission to the cure hospital. Now he is in the hospital with Alem (the Nani) and the Nurses informed me; the operation will take place by tomorrow. I will late you know everything by tomorrow. I believe every good things will happen for Dani.”
concision ,alert and oriented. Know he is stable and doing very well.”
I would like to thank on behalf of you for those who have been giving great support and care for Dani.”
Minor Surgery, Major Step
he is very happy as always he does.
walking distance from his bed room to physiotherapy room.
I have passed your plenty of kisses for Dani;he has responded with happy smile as always.
good general conditions, no epileptic attack for almost nine to ten months and he is on school brake
as well ,then The Dr.the decided to decrease the dose of carpamazapine to 50mg morning
and night;that was 50mg morning and 100mg night and to continue with the same dose of phentoin.
Dani is able to manage it very well.He is doing good with his general appearance and regular physiotherapy.
That his card shows in two pages written in Amharic , subjects he has been taking(Food training,physical exercise,communication,matching and training,self care,toilet training,and painting) and improvement he has scored.
It is your birthday again, and I’m so glad to present you our humble gifts.
Dani is doing good. He is taken out to socialize once in a while, meet people and have good times in shops or restaurants. He is thrilled about it.
I am on my way to Santiago, and yourself and Aleksandra are by my side.
El Muru peregrino.
Dani looks like a young man. The child we knew is starting to fade away, turning into an adolescent.
Please find Tesfaye’s recount on his last events:
“Dear Roberto; how are you these days?
Dani is doing good and I have passed all your meseges about his
learning, practice and that you are thinking a lot about him as well.
He was very happy and he was saying “eshi, eshi…”that is to say Ok,Ok….
In the last week, Zelalem and I took him out for Dinner out side Sele Enat compound,
it was a good experience for Dani; he was giving his charming face and hand for
greeting to every body passing beside him.
Dani was busy the past weeks beside his class and practice, we also took him for shopping as well to buy for him jackets, tshirts, underwears,
trousers and what he needs especially for this rainy time and he was very happy.
Oona has also come to visit Dani as well.
Dear Roberto;Thank you very much for everything.
“Dear Roberto;How are you doing?
Dani is doing fine, he has no epileptic attack even after his last appointment.
he is showing good progression with standing and walking.
And he is still attending his classes,they will close the school
for summer after two weeks.
Thank you very much for everything.
Last developments in Dani´s life are positive. While he practices daily, the incidences on his health are diminishing. At the same time, he is growing. Soon, he will be a grown up. In the meanwhile, Tesfaye is taking good care on his routine, encouraging him to continue practicing.
Let me show you a few graphic evidences.
Since your departure our lives continued regardless the pain and the feeling of solitude. At times, living joyfully seems walking uphill. Many others, daily routine becomes a pleasure filled with valuable experiences, worth living every single minute. The last one was certainly your legacy.
My recent time off has certainly not been Dani’s. He has not been stationary. On the contrary, he has moved surely and all times accompanied by Tesfaye. Please find a comprehensive recount on the previous weeks:
December 3, 2015
Dear Roberto; how are you?
Dani’s General health looks fine and stable with the epilepsy attack the past five months. He has been continuing to attend his class regularly as well.
On the October Dani was celebrating birth day with friends and visiting families.
I have attached Dani’s picture while he is training with KAFO.
January 5, 2016
How are you; how is Christmas and New Year?
Dani is doing fine.
These days he has been showing amazing effort to help himself, taking footsteps with his crutch and KAFO, moving with wheelchair independently from his sleeping room to the football field which is very
Important activity that help him to participate with children any time he wants, he is trying to wear clothes with minimal assistance, and he continued to go to the school.
Dani was also having a great new experience that he never had before; Volunteers (T.J helling and the porch swim team) came to visit the children and took them for swimming in a local Hotel including Dani. Dani’s water experience was great and he was fine after swimming. This kind of challenge will bring better improvement and skills for him, the team were done a great job that makes all children happy.
I have attached pictures of Dani’s footsteps, swimming and video if that works for you; during swimming and how he could able to manage his wheelchair to go to the field.
January 18, 2016
On 14/01/2016 we took Dani to Dr.Zenabe with Zelalem for his continuous follow up after three months of appointment.
He has asked how is Dani doing? We explain that Dani’s general appearance is looking good and he doesn’t show any epileptic attack for the past six to seven months after he has been taking drug combination of Phenitoin BID(100mg in the morning and night) and carpamazepine BID(50mg in the morning and 100mg in the night).
The Dr. explained that it will be good to reduce the of carpamazepine dose in order to decrease its side effects and he has planned to change to 50mg BID(in the morning and night), for now to continue with the same dose not to disturb his classes with withdrawal sign and symptoms and to change it after four months.
Dani’s next appointment to Dr Zenebe will be on May 13/5/2016.
Here you´ve got the latest news about terrific Dani:
October 19, 2015
we have taken Dani for his appointment on October 16 to Dr. Zenebe
since there is no any epileptic attack or any other syptoms, he has just
decided to continue with Dan’s current epileptic medications.
And he has appointed us after three months on January 14, 2016, to see if there
is any change after exposure to the external enviroment, class and temperature change
while he spent outside the compound.
I have attached Dani picture with the Zelalem in Chrismass hospital.
October 15, 2015
“Dear Roberto, how are you?
I have passed your big hug and warm greetings to Dani.
He is happy.
Tomorrow October 16, Dani has appointment for his follow up
with Dr.Zenebe. We will take him in the morning.
I have attached Dani’s pic while he was giving precast for KAFO.
Thank you for everything you are doing.
Kristiina, Tesfaye is our real angel.