Five Years

Hola Kristiina,

Five years passed since we last cheered together. Since we last felt the snow. Since we last planned. Since we last got our passports stamped.

Five years that have kept your vivid image in my retina.

Five years.

https://footshark.wordpress.com/2014/02/23/a-marvellous-departure/

School Year End

Hola Kristiina,

Dani has now finished his course and is ready to receive the yearly certificate of completion. This is rewarding for him, as well as for all of us.

Please see Tesfaye´s last news on his progress:

June 17th,

“… though this time is rainy in Addis, Dani is practicing his exercises regularly and his epilepsy is stable and controlled. The school is closed now and Dani will spend all the day in the orphanage for the next three months.  He might need something to stimulate him
during these days so I will try my best to make him active.”
June 8th,
“Dani is doing fine and there are no withdrawal symptoms that challenge him. He is doing his  best to achieve his functional activities, and participation  as always.
This time the school year is going end and Dani will spend the next three months in the orphanage with the children. It might be longer for him since he has adapted to go to school.”
May 10th,
“On Tuesday I have spent with Dani in the christmas hospital for his medical appointment. Dr Zenebe has asked and assessed how Dani was doing in the past  four months, then I have explained him that he was showing withdrwal symptoms for short durations, for two minutes in the begginning of January, after the reduction of the morning carbamazepine. Otherwise he is stable and active. Then, he has decided to continue with the same dose of carbamazepine (100 mg carbamazepine night and 100 mg phenytoin morning and night)  for the next six months, and to see him again in September.”

 

Up Hill

Hola Kristiina,
I am so glad to report with a few lines from Tesfaye, how great Dani is doing. I am receiving as well other nice reports from Addis, that cheer me up. I hope these news make you as glad as I am.
November 15th,
Dani is doing fine. He is grown up and improving every day with his
functional activity and gross motor skills. His gait speed and his leg stride is improving.
He has been going to the special needs  school, with great interest as usual.
November 30th,
About Dani, he is doing very fine and his level of ambulation is
dramatically improving. He is now able to walk over 30 minute on different surfaces (slopes, down hill and on smooth surface).
And he is also attending his school with great motivation and interest.
December 10th,
Dani is doing fine and he has been following his regular physiotherapy

program with great motivation and interest as usual and he has been showing

improvement  in his gross and functional skills.

He will  follow up program with doctor Tim in Cure Hospital for the second
time after six months in December 21st to recheck his level of improvement after
he had had minor surgery one year ago.
Illona invited, Timo (physiotherapist), Sari(physiotherapist), and Tomi.

They were from Finland and spent some time with Dani.

Sunny Glimpse to New School Year

Hola Kristiina,
Sun is shining again in Addis, and around the orphanage. Dani is glad about the  new school year commencement. Please find Tesfaye´s excerpt:
“The weather in Addis at the begging of the new year (Ethiopian New Year)
looks bright and sunny but now it seems like the rainy season will start over.
Soon I will get full information about Dani’s school schedule and comment and ideas from Dr. Zenebe after two months of Christmas hospital appointment.

Dani’s new year school registration will start on Tuesday October the second. He is very eager to go to the special school after three months of break. It will be a good place for him to improve his cognitive ability.

Dr. Zeneb’s will check at new year´s appointment, Dani´s state after the carbamazapine reduction. I have explained him that his epileptic condition is stable throughout the two

months after the reduction of the medication. And he has suggested to continue with same dose and to check results again after three months.”

Stats & Dats

Hola Kristiina,

Another rainy season is hitting Addis, and for the reports, this one seems heavy. However, “dat” doesn´t mean Dani slows down his practice. He is involved and joyus, as usual. He plays and enjoys the company of the other children at Sele Enat. Please find excerpts from Tesfaye´s reports:
July 7th
I have collected Dani’s result from his special need school
of the half semester. He has attended after he had the operation.
His result shows it is very encouraging and progressing for his full
independence in the future. His teachers have documented his result like
this on his cad after 5 months continuous assessment (self care-60%,toilet training-75%,food training-95,sensory integration-90, physical exercise-95%,matching and tracing-98%,communication skills-95).

Regarding Physiotherapy treatment has been on training which will help
him in his independent walking like open exercises with different environment
challenges and stimulation.

Dani will have also appointment of his continuous follow up to Dr. Zenebe in the next week after four months; to see if possible to decrease the medication he is taking.

His plan is to order EEG (electroencephalogram) and if there are positive changes on
the reading to reduce and to follow.
July 22nd
Here everything is going well, except this rainy season that looks heavy.
Today although I have taken Dani to Christmas hospital for his continuous
follow up, I didn’t get Dr. Zenebe because he is out of the country and I had to take another appointment for July 26.
Otherwise Dani is doing fine and he has kept practicing his exercises regularly.
Sele Enat organisation have passed great thanks for you and for those who have been involved for the support of Dani as well.

Dedication

Hola Kristiina,

If I were to express in written how much I appreciate the work Tesfaye is doing, I would need several blogs. He is consistent and caring. He gives away smiles and shares comfort. In exchange, he receives trust and so much love.

Tesfaye has the utmost level of dedication I have encountered. Therefore, I am humbly paying him a little homage in this post.

Thank you, Tesfaye, for taking so much care about Dani and the other children at the Special Needs Ward.

 

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Spring All Over

Hola Kristiina,

We are enjoying Spring, as well as Dani, as it is changing weather, here and there. It seems we aren´t that far from each other in this time of the year. Spring time comes with hopes.

Please find some excerpts from Tesfaye´s great job with Dani:

April 21,
Dear Roberto;
I have passed your warm greetings

to Dani  and he is responding with great smile. Dani’s appointment in April eleven, in prosthetics orthopaedic center went very well. They have taken his precast and they will let me know by the time they make ready the KAFO cast and i am waiting for their call.

April 7,
He is very happy .
Dani is grown up very well  physically and mentally .
His mental cognition and understanding is improving from time to time
as well. His general health condition is good and doing fine with his
Daily activity. Dani has appointment on Tuesday April 11, in prosthetic
and orthopaedic center for his knee ankle foot orthosis (KAFO). Hopefully
he will start his gait training after he gets his KAFO.
March 28,
Dear Roberto how are you ?i hope you are doing great.

Dani is doing good with all his health conditions and he
has continued to go to school and physiotherapy schedules
as well, although he is not practicing walking as expected because of his KAFO is not yet ready until the prosthetic orthosists has taken his measurement.

 

Back to School

Hola Kristiina,
Here we go again for an update on Dani´s progress. Please find the latest details coming from Tesfaye:
February 21st:
“He is doing very fine and the wound at the left heel is fully recovered. This couple of days
on 17/02/20017 and 21/02/2017 we were in prosthetic orthopaedic center for the new
 left leg -KAFO, knee ankle foot orthopaedics- that prescribed doctor Tim for correction of knee and ankle, in order to keep normal posture and for stability during standing and walking.
Tomorrow February 22, he has appointment in Christmas hospital for his continuous follow up that he was appointed, after four months, with doctor Zenebe, for his epilepsy; though his epilepsy is controlled for a year and three months now.”
March 4th:
“On February 22, Zelalem and I have taken Dani to Dr.Zenebe for his continuous follow up.

After we have explained Dani is in good condition and his epileptic attack is almost controlled, the Doctor has decided to decrease the medication for five months.

On this week Dani has also continued to go back to the school again after four months rest due to the surgery. He is happy and excited.”