Rainy season is once again hitting Addis, and Dani is making the best out of it with Tesfaye`s valuable help. He is cheerful, as usual, and eager to keep practicing, despite of the inconveniences.
Here, please find a few recalls from Tesfaye:
Dani is doing good and i have passed your big hug and plenty of kisses;
he is very happy as always he does.
Dani is showing a very good improvement in his gait (walking) activity
with the support of left KAFO (knee ankle foot orthosis) and with right
side axillary crutch. he is know walking slowly about 30 meters;it is like
walking distance from his bed room to physiotherapy room.
Hope fully this will improve his endurance,strength, cardiovascular
and his over all functional activity even better.
I have passed your plenty of kisses for Dani;he has responded with happy smile as always.
I have taken him for his appointment to Dr.Zenebe on July 14, after we explained Dani has
good general conditions, no epileptic attack for almost nine to ten months and he is on school brake
as well ,then The Dr.the decided to decrease the dose of carpamazapine to 50mg morning
and night;that was 50mg morning and 100mg night and to continue with the same dose of phentoin.
Dani is doing good with the new dose still he doesn’t show any withdrawal symptoms;he is doing very good.
And Dr.Zenebe give us next appointment for October 14 after three months to see any symptoms.
Although this days the weather of Addis is Rain,chilly and cloudy;
Dani is able to manage it very well.He is doing good with his general appearance and regular physiotherapy.
We have received Dani’s school certificate from mekinisa school,
That his card shows in two pages written in Amharic , subjects he has been taking(Food training,physical exercise,communication,matching and training,self care,toilet training,and painting) and improvement he has scored.
Dan’s Teachers state on his card that he has good improvement on
concentration,understanding, remembering, and fallowing orders, after comparing his activity through out the year.This is one big step for Dani,exposing him to different environment and situations helps a lot to improve his memory and motor learning.
This will be a good indication to see even better challenges and more exposure to different new environments in the future.
Dani”s Continues follow up with Dr.Zenebe in chrismass hospital after two months will be in July,14;We will take him and discuss again about his medications.
Dani looks like a young man. The child we knew is starting to fade away, turning into an adolescent.
Please find Tesfaye’s recount on his last events:
“Dear Roberto; how are you these days?
Dani is doing good and I have passed all your meseges about his
learning, practice and that you are thinking a lot about him as well.
He was very happy and he was saying “eshi, eshi…”that is to say Ok,Ok….
In the last week, Zelalem and I took him out for Dinner out side Sele Enat compound,
it was a good experience for Dani; he was giving his charming face and hand for
greeting to every body passing beside him.
Dani was busy the past weeks beside his class and practice, we also took him for shopping as well to buy for him jackets, tshirts, underwears,
trousers and what he needs especially for this rainy time and he was very happy.
Oona has also come to visit Dani as well.
Dear Roberto;Thank you very much for everything.
“Dear Roberto;How are you doing?
Dani is doing fine, he has no epileptic attack even after his last appointment.
he is showing good progression with standing and walking.
And he is still attending his classes,they will close the school
for summer after two weeks.
Thank you very much for everything.
Last developments in Dani´s life are positive. While he practices daily, the incidences on his health are diminishing. At the same time, he is growing. Soon, he will be a grown up. In the meanwhile, Tesfaye is taking good care on his routine, encouraging him to continue practicing.
Let me show you a few graphic evidences.
Here you´ve got the latest news about terrific Dani:
October 19, 2015
we have taken Dani for his appointment on October 16 to Dr. Zenebe
since there is no any epileptic attack or any other syptoms, he has just
decided to continue with Dan’s current epileptic medications.
And he has appointed us after three months on January 14, 2016, to see if there
is any change after exposure to the external enviroment, class and temperature change
while he spent outside the compound.
I have attached Dani picture with the Zelalem in Chrismass hospital.
October 15, 2015
“Dear Roberto, how are you?
I have passed your big hug and warm greetings to Dani.
He is happy.
Tomorrow October 16, Dani has appointment for his follow up
with Dr.Zenebe. We will take him in the morning.
I have attached Dani’s pic while he was giving precast for KAFO.
Thank you for everything you are doing.
Kristiina, Tesfaye is our real angel.
Dani is growing, and soon will go back to school. Let me show what Tesfaye explains about him:
How are you?
Yes it is true Dani is growing.These days he is very happy. He has spent by
singing traditional songs with all children for the new year. About the epilepsy he still
doesn’t have attacks after the antiepileptic drug (…)
modification made by the Doctor for almost three months now. I believe the
medication is helping for control.
About Dani’s school, they told me the school teachers are on meetings.
I will let you know as soon as I get the information when teachers are going to
start the class.
I keep telling to Dani about you that you are thinking about him every time…
i have attached Dani’s pics for you, while Dani is singing with his own words, as usual.
Remember I told you few months ago Dani went to school? Well, he did not only go, but achieved!
*Today´s date in Ethiopian calendar is 3 Nashi 2007.
We are happy to celebrate your birthday today. In different places but similar events took us to wonderful times. We cheer those moments and remind them warmly. Happy birthday Kristiina!
Dani is doing good, but his little friend Dani has departed to a different continent. Little Dani will be happy there, and so it is with Dani, although he might not understand it yet.
Everything else is good. Dani keeps practicing and visiting doctors regualarly. Soon he will “need knee ankle foot orthosis (KAFO) to support and stabilize the left leg, which is recommended and will be helpful for his symmetry and weight bearing.” We will be happy to support with it.
It’s been a while since the last time I told you events about Dani. We have managed to sort out future plans, and that has been positive.
Dani attends Mekanisa school since last month, and this is Tesfaye’s recount:
How are you doing? I am sorry for my delay to respond immediately, that is till I will get full information about Dan’s class situations. The past days there have been letter communication between the special need school and Sele Enat orphanage and we have also physically appeared two times to explain about Dani and to see the environment. The psychologist as well come to see Dani and he has suggested that the class will be helpful for him and to progress him to the next level based on his understanding, activities and improvement in the class. The class include both activity of daily living (washing, brushing teeth, toilet use…..), skills (writing, reading alphabet….) and sport class. From the time we told Dani that Roberto has working hard for you to start class. His first word to tell in the compound, for children, staffs, volunteers and for guests come to visit he always saying that “I am going to start class”. And not only Dani but also we all become happy about his class.
On March 17, 2015, Dani has started his first class in Makenisa school in one of the special needs class, Zelalem ,Yifru (driver),Belaynesh(care giver) and me accompanied him to the school. While he get there Dani gave his usual warm greeting and happy face to his new teachers, they respond they are very happy to meet him as their student and they provide place to sit and continued to ask him and listen his words. Then Selam (one of his teacher, you could see her in the picture) give for Zelalem and me to read and fill duties and responsibilities to be expected and done for Dani.
Specifically the school didn’t ask regular payment at the moment except to provide the requested materials and his transportation regularly.
I hope it looks good place for Dani at the moment, it will be the place he enjoy and learn more from it.
So, Kristiina, Dani’s physiotherapy is continuing and we all expect improvements progressively.
One year went by since the beginning of our project, and two years are soon to come since we first met Dani. Both events are glorious in my life, and nothing but delight and encouragement came along.
Dani is living a comfortable existence, in his mind. Probably because he did not have the chance to live any other. I keep motivating people around him to try to reach a sustainable progress. At times, it is unknown to me what the extend of my efforts is, and I strategize new ventures.
The result of the last one is following:
As I have mentioned for you,today march 4,2015 we have taken Dani for his appointment to Dr.Zenebe,after he has seen Dani he has asked about anti epileptic drug the he has ordered and how Dani is doing with it?we have explained for him that after the combination carbamine and phenition as he is not show any symptom and his general appearance looks good and the Doctor suggest that,as it is good to keep follow him with appointment and he has given a three month appointment for may,2015 since he is doing fine but he has also recommended to bring him in case of something happened.and he has ordered his anti epileptic drugs for three month and to continue with it.I will let you know about his special need class as soon as he has made his psychological assessment.”
So, yes Kristiina, Dani will likely attend special needs school. While we keep waiting for a decission on a possible surgery, Dani will try to use his time more effectively.