Exercise Day

Hola Kristiina,

Right before our celebration of midsummer-fest, I wanted to share with you Dani’s gorgeous hyperactivity and optimism with Tesfaye.

Sitting on the chair on his own.

Sitting on the chair on his own.

Now, he's grabbing toys.

Now, he’s grabbing toys.

Yeah, you can do it, Dani!

Oh, that's a cool ball!

Oh, that’s a cool ball!

..and that is so much fun!

..and that is so much fun!

Great job!

Ciaooooooo!

Ciaooooooo!

PT IN SILENAT ORPHANAGE

Dani & Dandy

Hola Kristiina,

We have got further reports on Dani’s syndrome, which probably dates back to a possible stroke he suffered during his early days or even while in his mother’s womb. One of its effects is hemiplegia, which developed after an atrophy in the right side of his brain, due to a lack of blood irrigation throughout the years. This made a vacuous on the right side that has been gradually filled with brain fluid. The fluid is pressuring the left side of the brain and slowly harming this side too. The hydrocephalia could be attenuated through neuro-surgery with a shunt, although the risk of fatal brain infection is rather high, especially with Dani’s living conditions.

With such prospects, Kristiina, we are going to look for possible clinical solutions out of Ethiopia. As well, we would like to improve Dani’s living conditions by establishing a consistent amount of regular physiotherapy sessions and search for educational opportunities, that could provide him with some future independence.

Kristiina, as you can read Dani has to learn to live with “Dandy” and we believe we can support him in this endeavour.

 

Dani

Dani

*We would like to thank the Black Lion and Bethel Teaching General hospitals in Addis Ababa, Ethiopia.

Good morning, Kristiina

Hola Kristiina,

Forgive my delay, but as you say, I have been kind of busy the last month. I have met many good hearted, caring, and loving people, from your ample family and friends. Many of them unknown to me, some others known by your continual references. They have all shared their warmth with me, with my mom, and even with Chiara.

     But I want to update you about our progress with Dani. He is fine, playing drum with one stick and singing, as usual. Anne has emailed me the picture below, where he plays with little Dani, as well cheerful.

Image

Two Daniels

     Well, you knew that the orphanage had sent Dani for an MRI, and that doctor said that his clinical condition is Dandy-Walker syndrome. You knew as well that Hanna had gathered his clinical history and that some of your colleagues were networking to find a neurologist in Addis who would want to take over Dani’s case. So here’s where the news come:

Nathalie and her husband, Umberto, are further looking for neurologists. They have kindly contacted two of them, and we are waiting for their responses, although a birdie told me that help is on the way. As you know, this is not an easy task in Ethiopia, but they are highly supportive. We thank them so much. At the same time, I keep contacting the neurologist advised by your contacts and I am confident to get his response.

     On the orphanage side, Regula and Anne keep volunteering and they update me regularly with news about Dani. Hanna is in the loop, as well as the senior staff. They have kindly approved our wish. Your friends in Addis have showed interest to visit the orphanage, and perhaps drop a hand sometimes. This is very kind of them.

     As you can see, we are not alone in this. In addition to the help provided by the family and friends mentioned above, there is an immense number of people who are financially supporting, among them Jose Luis and Yolanda, Irja, Emilio, Mima, Patricia, Dacio, Rene, Sergio, Amelie, and Julian, Tea and Carmine, Rossana, Ruth Elisabeth, Juliane, Carlos, and Mateo, Sahar, Monica, Matthew, Stina, Tanis, Linda, Päivi, Melanie, Giorgia and Veljko, Isabelle, Leila, Vera-Maria, Matthias and Andrea, Giorgio, Eloy, Eija, Liisa, Ville and Outi, Titta, Laura and Markus, Hilkka, Tuomo and Sirkka, Hannu and Kali, Terhi, Jaakko, Reima, Arja, Petri and Viljami, Laura, Viivi, Anna and Eva, Laura, WFP colleagues in Copenhagen, Vikke, Tiina and Tatu, Pohjan Veikot, Kaj, Stefan and Mirja, Kulkijat, Pia, Familia Sanjurjo, Prof. Hagemann, Maria, Maria, Riitta and Antti, Antti and family, Kaarina and Mick, Teuvo, Tanja, Nadja and Noora, BJ, Sirpa and Sofi, Marie, Rebeca, Carlo and Chiara, Helena and Hannu, Helena and Matti, Anne, Anna-Riitta, Maija and Kimmo, Annukka, Annikki and Veijo, Isabelle, Susanna, Tiina and Timo, YMCA Oulu, Anna ja Petri, Kaisa and family, Yobdar, Hannu and Pirjo, Anna-Kaisa, Kalle and Aapo, Irja and Teuvo, Helinä and Pekka, Riikka and family, Birgitta and Panu, Chiara, Manuel and Regula, Veera, Markku and Soile, cousin Elina and her family, Eeva-Maria and Kimmo, Ullamaija and Kaarle, Inma and Miquel, Pauliina, Atte, Marianne, Henrietta and Klaus, Aira and Seppo, Auli, Risto and families of cousins, Leena, Pentti and families of cousins, Veera, Jessica, Andres and Mercedes, Marta, Rafael, and Mariaana and Veltsu. But this is not all, because support is still incoming.

    Kristiina, I would like to let you know that we do not forget about Izabelle, our travel mate, and Desta, our driver. Please tell them that our thoughts and prayers are with them.

Talk to you soon, Pupunen.

Roberto