Hola Kristiina,
Five years passed since we last cheered together. Since we last felt the snow. Since we last planned. Since we last got our passports stamped.
Five years that have kept your vivid image in my retina.
Five years.
Tag Archives: rain
School Year End
Hola Kristiina,
Dani has now finished his course and is ready to receive the yearly certificate of completion. This is rewarding for him, as well as for all of us.
Please see Tesfaye´s last news on his progress:
June 17th,
“… though this time is rainy in Addis, Dani is practicing his exercises regularly and his epilepsy is stable and controlled. The school is closed now and Dani will spend all the day in the orphanage for the next three months. He might need something to stimulate him
during these days so I will try my best to make him active.”
June 8th,
“Dani is doing fine and there are no withdrawal symptoms that challenge him. He is doing his best to achieve his functional activities, and participation as always.
This time the school year is going end and Dani will spend the next three months in the orphanage with the children. It might be longer for him since he has adapted to go to school.”
This time the school year is going end and Dani will spend the next three months in the orphanage with the children. It might be longer for him since he has adapted to go to school.”
May 10th,
“On Tuesday I have spent with Dani in the christmas hospital for his medical appointment. Dr Zenebe has asked and assessed how Dani was doing in the past four months, then I have explained him that he was showing withdrwal symptoms for short durations, for two minutes in the begginning of January, after the reduction of the morning carbamazepine. Otherwise he is stable and active. Then, he has decided to continue with the same dose of carbamazepine (100 mg carbamazepine night and 100 mg phenytoin morning and night) for the next six months, and to see him again in September.”
Optimism
Hola Kristiina,
I just read an e-mail coming from Tesfaye. As usual, he tells me realistic Dani´s progress. But in his realism, he conveys a special optimism. You cannot imagine, Kristiina, how well this optimism feels, and believe it, it is not me the luckiest person to profit from his optimism, but Dani.
Please, find a few excerpts from his latest messages about Dani:
April 1st,
“Dani’s is doing fine;the epilepsy condition is even much better
after my last email, he didn’t show any withdrawal symptoms since
then.he is adapting him self with the change in reduction of his medication
the ‘Carpamazapine’. the gradual reduction of his medication will help in the
future to control the epilepsy with minimum medication or non.
future to control the epilepsy with minimum medication or non.
About his exercise program he is becoming use to it and he is happy to
exercise with great motivation and always ask to do his exercises regularly.”
March 14th,
“About his epilepsy after the reduction of the carpamazapine in the past
three months, he was showing one to two minute withdrawal for two days otherwise
he is fine and that doesn’t affect his daily activity. This sign is common after the reduction of epilepsy medication especially the carpamazapine since it has addictive property; so that we have decided to follow him with the some medication with out increment of the medication and although his forth month appointment with doctor Zenebe is in end of April .
Dani’s overall epilepsy condition has showing very great improvement; he has spent
his days with different activities; going to school, doing exercise, playing with children
and studying without the epilepsy attack this is great result compared to his past
experiences.
About Dani’s function skills ,activities and level of cognition is also progressing from time to time with his great participation and motivation.”
March 4th,
“Dani is doing fine and working hard to improve from time to time. Even though this days the weather of Addis is raining like rainy season, Dani is working hard even in uncomfortable weather conditions. I have passed your kisses and big hugs to Dani; he is responding with great smile and happiness. The usual question he ask me is “Roberto endet new” which means how is Robert.”
Sunny Glimpse to New School Year
Hola Kristiina,
Sun is shining again in Addis, and around the orphanage. Dani is glad about the new school year commencement. Please find Tesfaye´s excerpt:
“The weather in Addis at the begging of the new year (Ethiopian New Year)
looks bright and sunny but now it seems like the rainy season will start over.
Soon I will get full information about Dani’s school schedule and comment and ideas from Dr. Zenebe after two months of Christmas hospital appointment.
looks bright and sunny but now it seems like the rainy season will start over.
Soon I will get full information about Dani’s school schedule and comment and ideas from Dr. Zenebe after two months of Christmas hospital appointment.
Dani’s new year school registration will start on Tuesday October the second. He is very eager to go to the special school after three months of break. It will be a good place for him to improve his cognitive ability.
Dr. Zeneb’s will check at new year´s appointment, Dani´s state after the carbamazapine reduction. I have explained him that his epileptic condition is stable throughout the two
months after the reduction of the medication. And he has suggested to continue with same dose and to check results again after three months.”
Stats & Dats
Hola Kristiina,
Another rainy season is hitting Addis, and for the reports, this one seems heavy. However, “dat” doesn´t mean Dani slows down his practice. He is involved and joyus, as usual. He plays and enjoys the company of the other children at Sele Enat. Please find excerpts from Tesfaye´s reports:
July 7th
I have collected Dani’s result from his special need school
of the half semester. He has attended after he had the operation.
His result shows it is very encouraging and progressing for his full
independence in the future. His teachers have documented his result like
this on his cad after 5 months continuous assessment (self care-60%,toilet training-75%,food training-95,sensory integration-90, physical exercise-95%,matching and tracing-98%,communication skills-95).
independence in the future. His teachers have documented his result like
this on his cad after 5 months continuous assessment (self care-60%,toilet training-75%,food training-95,sensory integration-90, physical exercise-95%,matching and tracing-98%,communication skills-95).
Regarding Physiotherapy treatment has been on training which will help
him in his independent walking like open exercises with different environment
challenges and stimulation.
Dani will have also appointment of his continuous follow up to Dr. Zenebe in the next week after four months; to see if possible to decrease the medication he is taking.
His plan is to order EEG (electroencephalogram) and if there are positive changes on
the reading to reduce and to follow.
July 22nd
Here everything is going well, except this rainy season that looks heavy.
Today although I have taken Dani to Christmas hospital for his continuous
follow up, I didn’t get Dr. Zenebe because he is out of the country and I had to take another appointment for July 26.
Otherwise Dani is doing fine and he has kept practicing his exercises regularly.
Sele Enat organisation have passed great thanks for you and for those who have been involved for the support of Dani as well.
Spring All Over
Hola Kristiina,
We are enjoying Spring, as well as Dani, as it is changing weather, here and there. It seems we aren´t that far from each other in this time of the year. Spring time comes with hopes.
Please find some excerpts from Tesfaye´s great job with Dani:
April 21,
Dear Roberto;
I have passed your warm greetings
I have passed your warm greetings
to Dani and he is responding with great smile. Dani’s appointment in April eleven, in prosthetics orthopaedic center went very well. They have taken his precast and they will let me know by the time they make ready the KAFO cast and i am waiting for their call.
April 7,
He is very happy .
Dani is grown up very well physically and mentally .
His mental cognition and understanding is improving from time to time
as well. His general health condition is good and doing fine with his
Daily activity. Dani has appointment on Tuesday April 11, in prosthetic
and orthopaedic center for his knee ankle foot orthosis (KAFO). Hopefully
Dani is grown up very well physically and mentally .
His mental cognition and understanding is improving from time to time
as well. His general health condition is good and doing fine with his
Daily activity. Dani has appointment on Tuesday April 11, in prosthetic
and orthopaedic center for his knee ankle foot orthosis (KAFO). Hopefully
he will start his gait training after he gets his KAFO.
March 28,
Dear Roberto how are you ?i hope you are doing great.
Dani is doing good with all his health conditions and he
has continued to go to school and physiotherapy schedules
as well, although he is not practicing walking as expected because of his KAFO is not yet ready until the prosthetic orthosists has taken his measurement.
With A Big Help of Our Friends
Hola Kristiina, Easter time has arrived and trees are blooming all around since a few weeks in most parts of Europe, and the “small” rainy season must have started in Ethiopia. I hope the rain does not stop Dani from going out of his ward to enjoy a few moments with his mates in the playground. I am sure he is having the support of some volunteers and they are all playing together, while the little ones hang from his wheel chair and speed circling the football court. That would definitely make Dani’s day. Meanwhile, we keep doing well in Europe, and many more of your and my families, friends, colleagues and ex-colleagues, peers, acquaintances, and even unknown people touched by the project provide support. Among them Jose Luis and Yolanda, Irja, Emilio, Mima, Patricia, Dacio, Rene, Sergio, Amelie, and Julian, Tea and Carmine, Rossana, Ruth Elisabeth, Juliane, Carlos, and Mateo, Sahar, Monica, Matthew, Stina, Tanis, Linda, Päivi, Melanie and family, Giorgia and Veljko, Isabelle, Leila, Vera-Maria, Matthias and Andrea, Giorgio, Eloy, Eija, Liisa, Ville and Outi, Titta, Laura and Markus, De Stefanis International, Hilkka, Tuomo and Sirkka, Hannu and Kali, Terhi, Jaakko, Reima, Arja, Petri and Viljami, Laura, Viivi, Anna and Eva, Laura, WFP colleagues in Copenhagen, Vikke, Tiina and Tatu, Pohjan Veikot, Kaj, Stefan and Mirja, Kulkijat, Pia, familia Sanjurjo, Prof. Hagemann, Maria, Maria, Riitta and Antti, Antti and family, Kaarina and Mick, Teuvo, Tanja, Nadja and Noora, BJ, Sirpa and Sofi, Marie, Rebeca, Carlo and Chiara, Helena and Hannu, Helena and Matti, Anne, Anna-Riitta, Maija and Kimmo, Annukka, Annikki and Veijo, Isabelle, Susanna, Tiina and Timo, YMCA Oulu, Anna ja Petri, Kaisa and family, Yobdar, Hannu and Pirjo, Anna-Kaisa, Kalle and Aapo, Irja and Teuvo, Helinä and Pekka, Riikka and family, Birgitta and Panu, Nathalie and Umberto, Manuel and Regula, Veera, Markku and Soile, cousin Elina and her family, Eeva-Maria and Kimmo, Ullamaija and Kaarle, Inma and Miquel, Pauliina, Atte, Marianne, Henrietta and Klaus, Aira and Seppo, Auli, Risto and families of cousins, Leena, Pentti and families of cousins, Veera, Jessica, Andres and Mercedes, Marta, Rafael, and Mariaana and Veltsu. Pupu, I am learning these days how much the ones who knew you cared, and that makes me happy. 
Kristiina Juutinen Memorial Fund 