The Adolescent

Dani

Hola Kristiina,

Dani looks like a young man. The child we knew is starting to fade away, turning into an adolescent.

Please find Tesfaye’s recount on his last events:

“Dear Roberto; how are you these days?

Dani is doing good and I have passed all your meseges about his
learning, practice and that you are thinking a lot about him as well.
He was very happy and he was saying “eshi, eshi…”that is to say Ok,Ok….

In the last week, Zelalem and I took him out for Dinner out side Sele Enat compound,
it was a good experience for Dani; he was giving his charming face and hand for
greeting to every body passing beside him.

Dani was busy the past weeks beside his class and practice, we also took him for shopping as well to buy for him jackets, tshirts, underwears,
trousers and what he needs especially for this rainy time and he was very happy.

Oona has also come to visit Dani as well.

Dear Roberto;Thank you very much for everything.

Best Regards.”

“Dear Roberto;How are you doing?
Dani is doing fine, he has no epileptic attack even after his last appointment.
he is showing good progression with standing and walking.
And he is still attending his classes,they will close the school
for summer after two weeks.
Thank you very much for everything.
Best Regards,
Tesfaye”

Growth

Hola Kristiina,

Last developments in Dani´s life are positive. While he practices daily, the incidences on his health are diminishing. At the same time, he is growing. Soon, he will be a grown up. In the meanwhile, Tesfaye is taking good care on his routine, encouraging him to continue practicing.

Let me show you a few graphic evidences.

 

With A Big Help of Our Friends

Hola Kristiina, Easter time has arrived and trees are blooming all around since a few weeks in most parts of Europe, and the “small” rainy season must have started in Ethiopia. I hope the rain does not stop Dani from going out of his ward to enjoy a few moments with his mates in the playground. I am sure he is having the support of some volunteers and they are all playing together, while the little ones hang from his wheel chair and speed circling the football court. That would definitely make Dani’s day. Meanwhile, we keep doing well in Europe, and many more of your and my families, friends, colleagues and ex-colleagues, peers, acquaintances, and even unknown people touched by the project provide support. Among them Jose Luis and Yolanda, Irja, Emilio, Mima, Patricia, Dacio, Rene, Sergio, Amelie, and Julian, Tea and Carmine, Rossana, Ruth Elisabeth, Juliane, Carlos, and Mateo, Sahar, Monica, Matthew, Stina, Tanis, Linda, Päivi, Melanie and family, Giorgia and Veljko, Isabelle, Leila, Vera-Maria, Matthias and Andrea, Giorgio, Eloy, Eija, Liisa, Ville and Outi, Titta, Laura and Markus, De Stefanis International, Hilkka, Tuomo and Sirkka, Hannu and Kali, Terhi, Jaakko, Reima, Arja, Petri and Viljami, Laura, Viivi, Anna and Eva, Laura, WFP colleagues in Copenhagen, Vikke, Tiina and Tatu, Pohjan Veikot, Kaj, Stefan and Mirja, Kulkijat, Pia, familia Sanjurjo, Prof. Hagemann, Maria, Maria, Riitta and Antti, Antti and family, Kaarina and Mick, Teuvo, Tanja, Nadja and Noora, BJ, Sirpa and Sofi, Marie, Rebeca, Carlo and Chiara, Helena and Hannu, Helena and Matti, Anne, Anna-Riitta, Maija and Kimmo, Annukka, Annikki and Veijo, Isabelle, Susanna, Tiina and Timo, YMCA Oulu, Anna ja Petri, Kaisa and family, Yobdar, Hannu and Pirjo, Anna-Kaisa, Kalle and Aapo, Irja and Teuvo, Helinä and Pekka, Riikka and family, Birgitta and Panu, Nathalie and Umberto, Manuel and Regula, Veera, Markku and Soile, cousin Elina and her family, Eeva-Maria and Kimmo, Ullamaija and Kaarle, Inma and Miquel, Pauliina, Atte, Marianne, Henrietta and Klaus, Aira and Seppo, Auli, Risto and families of cousins, Leena, Pentti and families of cousins, Veera, Jessica, Andres and Mercedes, Marta, Rafael, and Mariaana and Veltsu. Pupu, I am learning these days how much the ones who knew you cared, and that makes me happy. IMG_4221

With a Little Help of Our Friends

Hola Kristiina,

It is a beautiful sunny day in here, and I am confident you have sent this wonder to us. Dani had a great drive on Friday, when he visited the Korean Hospital. He was cheerful and excited, as I thought it was going to be. He laughed and shared his “shark-charm” to his car mates and people in the hospital.

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Shark-charm

However, and that kept us kind of baffled, there was not much information we could get from Dani’s visit to Dr. Marsha. Apparently the doctor needed background information regarding Dani’s mother pregnancy and his early life. Unfortunately, it is unlikely to obtain this information as Dani arrived to Sele Enat Mahiber from another orphanage and there are no records available.

We have been brainstorming during the weekend and came up with different curative ideas. We could provide for physiotherapy, for diction therapy, for orthopaedic support, and even for education, as Dani has not attended yet school. But none of us is a health professional and do not know well if it is going to help to a high degree. Nevertheless, we think it is not going to harm, as I have personally experienced his physical progress during my time with him, so we agreed to start helping Dani with physiotherapy and a consultation by an occupational therapist.

Therefore, Kristiina, we will keep looking for a doctor who could treat Dani and reportedly agree on what his medical problem is.

Regarding Dr. Kiplesund, the neurologist you managed to find with your tireless networking, I have to say that I did not get any reply to my emails. But I am confident he did not learn about them, probably due to some technical problems or electronic address misspell. But I am confident as well that publishing this lines will, somehow, reach him. We are hopeful in this, and we are grateful for any support from people who could help finding a doctor for Dani.

Kristiina, do not think we got disappointed by the last event. As your mom says, we knew it was not only provide and raise money, but a common and dedicated effort towards Dani’s health improvement, and that will take time. We feel strong, and every step backward will only be to get impulse.

And now, Pupunen, enjoy with us Dani’s sunniness, the one that draws smiles from every person that crosses his path.

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Dani waits for the Doctor

Help is here!

Hola Kristiina,

As remarked previously, “help is on the way,” yes! Nathalie and her husband have found a doctor willing to take Dani for medical consultation. Dr. Marsha has kindly agreed to see him. That will be on Friday, March 28, in the Korean Hospital. Hanna will go along with Dani and Nathalie, and we are all hopeful.

I have been lately thinking about Dani, and our long walks from the Special Needs rooms at the orphanage to the Babies pavilion. I remember the many times Dani greeted and cheered other kids and staff during our walks, screaming of happiness, sometimes, and laughing and singing others. I can only imagine how blissful he will feel once he learns that he is going out on Friday, for a drive with Hanna and Nathalie. I would love to see his face.

Kristiina, there are still people supporting in different ways to Dani’s cure. Many of them relatives, friends, and colleagues, but some are just people touched by the intention of this assistance. They express the joy they feel while learning about Dani, and they engage emotionally in the aid. Some have told me their stories about their sick kids, and have asked me whether their disease is Dandy-Walker syndrome. To which, I can only explain what I learned. Some others have asked what else can they do to support, in addition to the financial contribution. I cannot really say much if they are not physically in Addis, but I suggested them to spread awareness about Dandy-Walker syndrome, and perhaps share this story, the story of the many of us engaged in curing Dani.

Pupunen, I will leave you for now, because I know there are many important people there who want to meet you, and I will keep you posted about Dani’s prognosis on Friday.

Help is here!

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Super Dani

A LIFE LOST, ANOTHER MUST BLOOM

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Kristiina Juutinen passed away on February 15, 2014 in a tragic accident in the Danakhil Depresion, Ethiopia. She was a brave and dedicated expectant mother who committed part of her life to help alleviate the suffering of those in need. She volunteered and worked in places like Namibia, Zambia, Somaliland, Ethiopia, Nepal, Italy, and Finland. During her last period in Ethiopia she engaged in curing Daniel Abraham, an eight year old orphan at Sele Enat Mahiber affected by Dandy-Walker syndrome. She liaised with different doctors and aid workers to provide treatment and a potential surgery that would lead to Dani’s recovery.

The Juutinen Lisko and Santamarta Perez families are committed to continue her legacy setting the “Kristiina Juutinen Memorial Fund” in support for Daniel Abraham. They will not recover Kristiina to their lives physically, but wish to dedicate their energy to channel Dani into a healthy condition, from which he could grow and develop as a normal child.

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Daniel Abraham

The families humbly suggest to those who are willing to send flowers or condolence cards for Kristiina’s funeral to, instead, transfer its value into Kristiina Juutinen Memorial Fund. They would appreciate the support of any other donation for the same purpose. Donations can be transferred to:

We are grateful for the support received and will be implementing our project for the next few years.

For the moment we kindly ask to halt donations as the project is sufficiently funded. We will, therefore, concentrate in the implementation phase.

Dani’s health improvement is our utmost desire and focus.

 

Memorial Fund audit will be available to donors upon request.

Daniel Abraham’s surgical intervention and recovery process progress will be regularly posted in this blog, as well as operational requirements and request for potential support.