Get Well, Dani!

Dani!

 

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School Year End

Hola Kristiina,

Dani has now finished his course and is ready to receive the yearly certificate of completion. This is rewarding for him, as well as for all of us.

Please see Tesfaye´s last news on his progress:

June 17th,

“… though this time is rainy in Addis, Dani is practicing his exercises regularly and his epilepsy is stable and controlled. The school is closed now and Dani will spend all the day in the orphanage for the next three months.  He might need something to stimulate him
during these days so I will try my best to make him active.”
June 8th,
“Dani is doing fine and there are no withdrawal symptoms that challenge him. He is doing his  best to achieve his functional activities, and participation  as always.
This time the school year is going end and Dani will spend the next three months in the orphanage with the children. It might be longer for him since he has adapted to go to school.”
May 10th,
“On Tuesday I have spent with Dani in the christmas hospital for his medical appointment. Dr Zenebe has asked and assessed how Dani was doing in the past  four months, then I have explained him that he was showing withdrwal symptoms for short durations, for two minutes in the begginning of January, after the reduction of the morning carbamazepine. Otherwise he is stable and active. Then, he has decided to continue with the same dose of carbamazepine (100 mg carbamazepine night and 100 mg phenytoin morning and night)  for the next six months, and to see him again in September.”

 

Optimism

Hola Kristiina,

I just read an e-mail coming from Tesfaye. As usual, he tells me realistic Dani´s progress. But in his realism, he conveys a special optimism. You cannot imagine, Kristiina, how well this optimism feels, and believe it, it is not me the luckiest person to profit from his optimism,  but Dani.

Please, find a few excerpts from his latest messages about Dani:

April 1st,

“Dani’s is doing fine;the epilepsy condition is even much better

after my last email, he didn’t show any withdrawal symptoms since

then.he is adapting him self with the change in reduction of his medication
the ‘Carpamazapine’. the gradual reduction of his medication will help in the
future to control the epilepsy with minimum medication or non.
About his exercise program he is becoming use to it and he is happy to
exercise with great motivation and always ask to do his exercises regularly.”
March 14th,
“About his epilepsy after the reduction of the carpamazapine in the past
three months, he was showing one to two minute withdrawal for two days otherwise
 he is fine and that  doesn’t affect his daily activity. This sign is common after the reduction of epilepsy medication especially the  carpamazapine since it has addictive property; so that we have decided to follow him with the some medication with out increment of the medication and although his forth month appointment with doctor Zenebe is in end of April .
Dani’s overall epilepsy condition has showing very great improvement; he has spent
his days with different activities; going to school, doing exercise, playing with children
and studying without the epilepsy attack this is great result compared to his past
experiences.
About Dani’s function skills ,activities and level of cognition is also progressing from time to time with his great participation and motivation.”
March 4th,
“Dani is doing fine and working hard to improve from time to time. Even though this days the weather of Addis is raining like rainy season, Dani is working hard even in uncomfortable weather conditions. I have passed your kisses and big hugs to Dani; he is responding with great smile and happiness. The usual question he ask me is  “Roberto endet new” which means how is Robert.”
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Dedication

Hola Kristiina,

If I were to express in written how much I appreciate the work Tesfaye is doing, I would need several blogs. He is consistent and caring. He gives away smiles and shares comfort. In exchange, he receives trust and so much love.

Tesfaye has the utmost level of dedication I have encountered. Therefore, I am humbly paying him a little homage in this post.

Thank you, Tesfaye, for taking so much care about Dani and the other children at the Special Needs Ward.

 

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Rainy Addis

Hola Kristiina,
Rainy season is once again hitting Addis, and Dani is making the best out of it with Tesfaye`s valuable help. He is cheerful, as usual, and eager to keep practicing, despite of the inconveniences.
Here, please find a few recalls from Tesfaye:
August 8th,
Dani is doing good and i have passed your big hug and plenty of kisses;

he is very happy as always he does.

Dani is showing a very good improvement in his gait (walking) activity
with the support of left KAFO (knee ankle foot orthosis) and with right
side axillary crutch. he is know walking slowly about 30 meters;it is like

walking distance from his bed room to physiotherapy room.

Hope fully this will improve his endurance,strength, cardiovascular
and his over all functional activity even better.
July 30th,

I have passed your plenty of kisses for Dani;he has responded with happy smile as always.

I have taken him for his appointment to Dr.Zenebe on July 14, after we explained Dani has
good general conditions, no epileptic attack for almost nine to ten months and he is  on school brake
as well ,then The Dr.the decided to decrease the dose of carpamazapine to 50mg morning
and night;that was 50mg morning and 100mg night and to continue with the same dose of phentoin.
Dani is doing good with the new dose still he doesn’t show any withdrawal symptoms;he is doing very good.
And Dr.Zenebe give us next appointment for October 14 after three months to see any symptoms.
July 4th,
Although this days the weather of Addis is  Rain,chilly and cloudy;

Dani is able to manage it very well.He is doing good with his general appearance and regular physiotherapy.

We have received Dani’s school certificate from mekinisa school,
That his card shows in two pages written in Amharic , subjects he has been taking(Food training,physical exercise,communication,matching and training,self care,toilet training,and painting) and improvement he has scored.
Dan’s Teachers state on his card that he has  good improvement on
concentration,understanding, remembering, and fallowing orders, after comparing his activity through out the year.This is one big step for Dani,exposing him to different environment and situations helps a lot to improve his memory and motor learning.
This will  be a good indication to see even better challenges and more exposure to different new environments in the future.
Dani”s Continues follow up with Dr.Zenebe in chrismass hospital after two months will be in July,14;We will take him and discuss again about his medications.

The Adolescent

Dani

Hola Kristiina,

Dani looks like a young man. The child we knew is starting to fade away, turning into an adolescent.

Please find Tesfaye’s recount on his last events:

“Dear Roberto; how are you these days?

Dani is doing good and I have passed all your meseges about his
learning, practice and that you are thinking a lot about him as well.
He was very happy and he was saying “eshi, eshi…”that is to say Ok,Ok….

In the last week, Zelalem and I took him out for Dinner out side Sele Enat compound,
it was a good experience for Dani; he was giving his charming face and hand for
greeting to every body passing beside him.

Dani was busy the past weeks beside his class and practice, we also took him for shopping as well to buy for him jackets, tshirts, underwears,
trousers and what he needs especially for this rainy time and he was very happy.

Oona has also come to visit Dani as well.

Dear Roberto;Thank you very much for everything.

Best Regards.”

“Dear Roberto;How are you doing?
Dani is doing fine, he has no epileptic attack even after his last appointment.
he is showing good progression with standing and walking.
And he is still attending his classes,they will close the school
for summer after two weeks.
Thank you very much for everything.
Best Regards,
Tesfaye”

Growth

Hola Kristiina,

Last developments in Dani´s life are positive. While he practices daily, the incidences on his health are diminishing. At the same time, he is growing. Soon, he will be a grown up. In the meanwhile, Tesfaye is taking good care on his routine, encouraging him to continue practicing.

Let me show you a few graphic evidences.

 

Vamos!

Hola Kristiina,

Here you´ve got the latest news about terrific Dani:

October 19, 2015

“Dear Roberto,
we have taken Dani for his appointment on October 16 to Dr. Zenebe
since there is no any epileptic attack or any other syptoms, he has just
decided to continue with Dan’s current epileptic medications.
And he has appointed us after three months on January 14, 2016, to see if there
is any change after exposure to the external enviroment, class and temperature change
while he spent outside the compound.
I have attached Dani picture with the Zelalem in Chrismass hospital.
best rergards”

October 15, 2015

“Dear Roberto, how are you?
I have passed your big hug and warm greetings to Dani.
He is happy.
Tomorrow October 16, Dani has appointment for his follow up
with Dr.Zenebe. We will take him in the morning.
I have attached Dani’s pic while he was giving precast for KAFO.
Thank you for everything you are doing.
best regards”

Kristiina, Tesfaye is our real angel.

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Sing, Dani!

Hola Kristiina,

Dani is growing, and soon will go back to school. Let me show what Tesfaye explains about him:

“Dear Roberto;
How are you?
Yes it is true Dani is growing.These days he is very happy. He has spent by
singing traditional songs with all children for the new year. About the epilepsy he still
doesn’t have attacks after the antiepileptic drug (…)
modification made by the Doctor for almost three months now. I believe the
medication is helping for control.
About Dani’s school, they told me the school teachers are on meetings.
I will let you know as soon as I get the information when teachers are going to
start the class.

I keep telling to Dani about you that you are thinking about him every time…
i have attached Dani’s pics for you, while Dani is singing with his own words, as usual.
best Regards.”

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